Thanks for the Reminder

So you know the Facebook “On This Day” memories post that’s at the top of the page every morning reminding you of all those amazing memories you’ve had over the last 10+ years? I love them! I love looking at posts and pictures of funny things my oldest son said when he was two or adorable pictures of my boys together. I love it all!

Except.,.this time of year…it’s very hard!

You see it was 8 years ago at this time that my beautiful, perfect baby boy growing inside of me took a painful blow that caused his CP!

I’m Kell Sensitized (for the full story check out the About Us section). Grant had his first blood transfusion in-utero December 11, 2009. Thank for the reminder!! As I read the note I wrote about it 8 years ago yesterday my face flooded with tears! Even teary as I type this. Every year the realization hits me that we almost lost him that day!! His heart rate dropped scary low and they were seconds away from putting me under and delivering my baby boy who wouldn’t have survived. My heart hurts, as I lay here holding him, thinking we were mere seconds away from this never happening.

That transfusion started a very long and emotionally and physically draining 11 days.

On December 18th, what started as a regular MCA Doppler on his brain to check his blood levels turned into an emergency blood transfusion. Every time they transfused they had to check his blood level to see how much they had to put back in. They liked his Hemoglobin Level at a 10-12…he was at a 3! Extremely…extremely anemic!! If we had wanted another day it he wouldn’t have survived…again I almost lost my son!!! Four short days later we were at it again but with not so scary results this time.

My son had 6 transfusions before he was even born. It was the transfusion on December 18, 2009 that took away all our hopes and dreams of being “normal”.

Now at the time none of this seemed as scary as it is when I read it year after year. Now that I have joined the amazing Isoimmunization group on Facebook I’ve learned just how scary it was.

I remember going in for the MCA at 24 weeks and seeing that dark spot on his brain and knowing that was not okay. The doctors kept dancing around it saying they would just keep an eye on it. Finally at 26 weeks I asked what it was and what it meant. It was then they told me my son would likely have Cerebral Palsy!

I do have to say that with each year the guilt I bear grows stronger. The hurt and the pain I feel knowing that I couldn’t protect him tears my heart apart. Wondering about all the “what if’s”. What if I had waited longer between pregnancies? What if I had educated myself more (although at the time there was next to no info about it online)? What if…what if…what if?

These feelings don’t stay with me constantly! In fact I very rarely feel this way. But this time of year brings it out at least for that 11 days 8 years ago in which our world unknowingly came crashing down! But I rebuilt that world…reconstructed it…adapted it and it’s a pretty amazing world. I think it’s those feelings of sorrow, guilt, even anger…it’s the raw tears I cry in the shower when know one can see or hear…it’s those emotions that get me through!

Moral of the story: life may knock you down and kick you while you are there. Take a deep breath, stand up tall, brush it off and keep going!

Have a blessed day!

“You’re So Lucky”

So after I had Grant way back in 2010 I got postpartum hyperthyroidism. I quickly lost a lot of weight and got down to my lowest weight since forever of 108lbs. “Poor Beth” thought a lot of people “she’s losing weight without having to do anything.” “You’re so lucky! I wish I could get Hyperthyroidism.” No it most definitely wasn’t easy or awesome and I wasn’t lucky…I was miserable.

Fast forward 7.5 years and I think it has crept its way back into my life and I’m not happy!

I’ve lost 12lbs in about a month with no diet or exercise change (and no I’m not stressed about anything!). I have all the tale tell symptoms:

* weight loss – ✔️

* frequent rapid heartbeat – ✔️

* sweating – ✔️

* frequent bowel movements (sorry tmi) – ✔️

* soft/splitting nails – ✔️

* heat intolerance – ✔️

* irregular periods (again tmi) – ✔️

* muscle weakness – ✔️

* fatigue – ✔️

Those are just the big ones. I am hungry ALL the time. Most the time I eat all day sometimes I can barely eat a bite.

Some days are just fine but others are not. Yesterday for instance was awful!! I felt light-heated and extremely fatigued all day. I was trying to clean the house and keep doing laundry to get rid of the Scabies (refer to my last post about our awful month with Scabies!) but I had to keep sitting down because I was just so weak.

I will be calling the dr today and hopefully getting it all figured out soon so I can start feeling better. It’s hard to carry a 31lb kiddo when you have no strength! I will keep you all posted and updated as I learn more and share with you how I plan on trying to manage it with essential oils!

Moral of the story…listen to your body! Take care of yourself no matter how crazy life is!

Have a blessed day!

Scabies?! Ew!!

So our last month has been awful!! Back at the beginning of November Grant broke out in what we thought was a rash. I took him to his doctor and she said it looked like a viral rash and should go away in about a week. Two weeks later the rash had only gotten worse. It was extremely itchy and uncomfortable for him! I still thought maybe a viral rash that’s taking longer because that’s how Grant rolls! He woke up every hour to an hour and a half at night just crying because of how bad it itched. The only relief he could get was from the Young Living Seedlings baby lotion. Finally I started getting spots that itched horribly!

Okay this is not a viral rash!! This is awful!!

I took him back to the doctor to learn that he (and I) had Scabies!!

How nasty!! I immediately felt just gross. She gave us cream that all 5 of us had to rub from head to toe. We had to wash all blankets and put away stuffed animals for a few days. Well I did everything right but just as his spots were going away they started all over again!

No way!! This has got to stop!!

Now, as I’ve said before Grant has very limited mobility so imagine having a mosquito bite on steroids times 100 and not being able to scratch a single one. Oh and he can’t talk so he couldn’t even tell me where it itched or just how frustrated he was. I’m pretty sure he cussed me out a few times in the only way he can 😁 I can’t imagine how he felt because the itching was so incredibly intense!!

So we did the cream again…ugh!!! This time I meant serious business! Bedding has been washed three times in 4 days and every piece of clothing has been washed. Stuffed animals and anything that can’t be washed but can carry these damn bugs is wrapped tight in trash bags.

But was that the end? No! Because when Grant does something he does it big!! Some of his sores got infected and he got a horrible case of cradle crap!! Yes it is cradle crap because…well it’s just crappy!

<<<<<<<<<<<<
n given a shampoo to use 2-3 times in a week. A cream to rub on the infected areas 3 times a day for 7 days. Oh and they prescribed an antibiotic…but what is a side effect of the antibiotic? SEIZURES!! (That's another story for another day). So we said no way to the antibiotic and I will be calling in the morning to see if he can get a different one.

All this started on November 10th. Today is December 10th and he's is finally showing signs of relief for the first time in a month. He is so much more relaxed and he's smiled and laughed more this weekend then the has in the last 4 weeks! I'm so relieved to have my boy back!!

Moral to the story…DON'T GET SCABIES 🤪

Have a blessed day!

Christmas Sucks!!

It’s true! Christmas sucks!!

Okay, okay maybe that was a little harsh!! It absolutely does not suck and it’s actually my favorite holiday and favorite time of year!

So then why would she say that?

Well let me fill you in. Buying gifts for my kids is my favorite part of it. Thinking about the joy on their faces when they see all the gifts they got makes me so happy. Grace is easy to buy for…she’s two and a girl…enough said! Matthew is pretty easy to by for…not only does he tell me what he wants but I know what he wants. He’s easy to buy for but at nine he’s also expensive!

Now Grant…that’s where the sucky part comes in. Grant is seven. He is a boy. He likes everything boy. He wants everything boy. Awesome…so what’s the problem? Grant has Cerebral Palsy!! He cannot sit on his own, he cannot stand in his own. He has very, VERY limited mobility in his arms and hands. He cannot hold a toy and play with it. He can’t even use a remote control car without help. That SUCKS!! I have the hardest time with him and the older he gets the harder it gets. He wants the awesome toys that all seven almost eight year old boys want but he just can play with it. I do my very best at playing with him and helping him play with all his toys but let’s face it…as much as I wish I could I can’t sit every minute of everyday and play with him I can’t and that…well that sucks bad.

But what is the amazing part? I still get him all the gifts he asks for…okay not all because let’s face it I’m not a millionaire…and his face lights up just like his brother and sister. That smile that lights up the room…that does not suck!!

Have a blessed day

Mom Mealtime Win

Who would’ve thought that my third child would’ve been my most picky eater. Grace is really challenging me lately on the mealtime. She is 20 months old and literally eats nothing…she grazes. I know…I know she will eat when she’s hungry! But that’s the problem. All she ever wants is junk food! And this girl gets hangry!! Now here comes my confession – we eat junk food!! We are not all natural, all organic food eaters! We eat junk! But we only get the sweets after we eat the good food and that’s a concept Grace is having a hard time understanding. Now here’s her other problem – she’s a texture girl like her Momma! If she touches it and doesn’t like how it feels it’s game over!

To help find a resolution of course I took to Pinterest!! After searching and pinning I finally decided to serve lunch in an ice cube tray. Sounds crazy, right?! Well I honestly kind of loved the idea!! So I headed to the grocery store to grab a whole array of food!

 I prepared the food and put it on her tray fully expecting her to reject all the colors and options but guess what…she didn’t! Instead I got a big smile and she reached for blueberries and then the apples and grapes and even the apricots. She also tried carrots, ham, raisins, broccoli and cucumbers. She wasn’t completely sold on those but hey she tried! These are all foods I’ve offered in the past and she snubbed her nose to all of it.

IMG_1624

Would I say it was a huge success? No…but she was much more adventurous with her food and it’s definitely something we will start doing at lunchtime so I’m calling it a mom mealtime win!!

Summertime Boredom Busters

Summertime can be a crazy time in our house. I am excited to have the boys home and get so much time with them but it’s not long before the “I’m so bored” starts. This year I decided to take control and get organized from the start!!

Now here’s the thing…with all of our summer plans we have to accommodate an 8 year old, a 7 year old who is in a wheelchair and a 20 month old! That’s quite a wide range luckily my 8 year old is easily entertained. My 7 year old may have special needs and be fully dependent on me but is pretty much go with the flow. It’s the crazy 20 month old that isn’t as easy (thank goodness lots of the activities will be done during her naptime) those that aren’t can be adapted to her age. So after lots of searching on Pinterest for some great ideas I found this schedule with a different theme for each day. I kind of loved it but made my own little changes to it.

summer schedule - weekly

(to save image click on it and right click and save…easy as that)

So based on this fun daily scheduled I’ve planned our enjoyable, bored-free summer!! Will every day go exactly as planned…definitely not! With Grant being in summer school 3 hours a day we have to tweak some of our plans a bit but by the end of the week we get all our awesome activities done! Here are some of our plans this month:

These are just a few of the exciting plans this summer! Stay tuned for updates on certain activities and how the kiddos feel about them.

Have a blessed day!